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The Health Insurance Portability and Accountability Act Privacy Rule and Its Impact on Cancer Research

Increasing reliance on electronic health records by health care providers over the past decade has heightened public sensitivity to the security of identifiable health information. With this in mind, the US Department of Health and Human Services (HHS) implemented the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule in 2003. Members of ASCO had similar concerns for the privacy of their patients but also worried that the new regulations would interfere with conduct of cancer research.

Five years later, ASCO's Cancer Research Committee revisited implementation of the Privacy Rule. Committee members had experienced substantial changes in research conduct over . . . [Click for More]

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